Ava is five and she lives in South Yorkshire. She wishes to go glamping with her family this summer. She’s never been able to camp outdoors because of her condition, so has asked for our help to make her wish come true. Will you help Ava to discover the magic of sleeping under the stars by sponsoring her wish?
Ava’s mum, Laura, says:
“We knew she was going to be born with a heart defect and it was scary, but she did better than the doctors hoped and we left hospital after a few days. About three months old, Ava started to go downhill and needed heart surgery. Afterwards, she spent three long weeks recovering in intensive care.
“Sadly, eight weeks after the surgery they found a huge aneurysm on her heart, the size of a golf ball, pressing against her ribs. Again, she fought back, and she’s been doing well since. So far, Ava’s had three surgeries and has more to come. Her heart is still in the same condition now as it was when she was born but her body has adapted to make up for it.
“Her mobility isn’t great and in winter she catches every illness going around. It’s difficult for her being constantly poorly, but even when she’s unwell it doesn’t stop her from smiling. Ava will always live with her heart defects unless she seriously deteriorates and goes onto the heart and lung transplant list, so it’s important for her to know her limits.
Helping other children to understand
“A nurse comes out to check her sats, she has a dietician, check ups at hospital, and needs further surgery soon. At school, Ava can’t join in with P.E. so she does arts and crafts instead. She knows she can’t do as much as the other children and she’s open about her condition. She gets asked about it a lot because her lips are often blue, and she’ll turn around and say “I’ve got four heart defects!”
Where it all started
“She watched an episode of Peppa Pig a few years ago about going in a campervan and she’s been fascinated by the idea ever since! Her condition means she must be kept warm at all times, and it’s just too cold for her to sleep in a normal tent overnight.
In her element
“Wishgranter Debbie has helped Ava to create her very own unique wish. Ava got to choose our accommodation and she completely took charge from that point! She is extremely independent so she’s in her element. It’s been so exciting for her through the whole process so far.
“Ava has two imaginary friends called Elsie & Pippa, who she wants to bring on her glamping trip, together with little brother William and Noodle, the family dog! Our focus a lot of the time is on William because of his autism, so things like just spending some time with her daddy, who has just left the navy, on her wish will be really special for her.
“Staying somewhere that’s nothing like a hospital will be exciting for her. She’s looking forward to toasting marshmallows on the fire and visiting the seaside after a night camping in the outdoors.”
Please sponsor Ava’s wish to go glamping and give her a chance to discover the hope, joy and wonder that childhood should be filled with every day.